Things have been going quite well since our last update (over two months ago). We've seen James graduate from Kindergarten and prepare for First Grade. We've had visits from our cousins and enjoyed a couple of trips to Dollywood and Splash Country. Jacob has been attending a Pre-K program twice a week. Both boys have attended Music
Camp (James) and VBS (Jacob). Jacob can now jump a little and even run. He has gained almost five pounds since his January surgery. The urological aspect of this most recent surgery has worked very well. Jacob has been eating and sleeping very well over the past three months. This is a most welcome change for all of us. Praise the Lord for His amazing grace and the undeserved mercy that He has extended to our family.
There has been one area of concern with Jacob that has "worsened" slightly over the past few months. His stoma, which had begun to prolapse (come out) as of our last update, has gone from about 2-3 inches out to now being close to 6 inches. Essentially, instead of having this small bit of stoma (where his poo empties into a colostomy bag), it now looks like a lenghthy portion of his colon is extending from his body. The doctors have advised us that as long as the color and output are OK, then he is fine until his next scheduled doctor appointment. Those appointments are happening this week. See the next update for more info on the outcome of these appointments and what is coming next.
To quote one of Jacob's favorite songs, which he sings quite often - "My God is so big, so strong and so mightty, there's Nothing My God cannot do."
Mommy and Daddy