Update from the past few weeks

Jacob has been doing fairly well since the last update and ER visit earlier this month. His vocabulary is growing daily and his personality continues to develop. His mobility has also been good. He is slowly recovering from a bout with bronchitis (or something like it). He has also had a couple of fevers over the past few weeks, perhaps related to the respiratory illness. They were similar to the high fever he spiked while in the hospital in that he didn't act very sick. So we are not totally sure what may have caused these, but we are thankful that they seemed to have passed.

On a separate front, we have had a bit of a concern with his stoma (colostomy). It has started to protrude as much as two inches (sometimes closer to three) from his body. We have e-mailed the surgeon at Johns Hopkins but have not heard back from him. We did, however, speak with one of the nurses by phone and she advised that as long as the color looks good and their is output, we should be OK. Everything else regarding his most recent surgery, especially the urological side of things, has been working quite well.

Please continue to pray for the things mentioned above and rejoice with us well. Jacob has been able to get back into the Pre-K program that he attended before and even though it is only once or twice a week, he seems to like it quite well. In addition, with the exception of this past Sunday when Jacob was still sick with the respiratory infection, we have been able to get back to church on a pretty regular basis.

As we approach the Easter weekend, we hope everyone will remember what this "holiday" symbolizes, that being the death and resurrection of our Lord and Saviour, Jesus Christ.

"He is Risen. He is Risen indeed."

Mommy and Daddy