Jacob's Gran and Papa Frere came to sit with Jacob this afternoon. He calls them Nanna and Papa and we were glad to hear him actually say these words and "talk" a little more today. He has started to eat again and managed to take down some pears and even some meat sticks (his personal favorite). He also received his first bath today, which helped tremendously. He continues to struggle with the rashes and also the itching (likely caused by the pain meds). In addition, we still have not seen much movement in his right foot, but the doctors remain optimistic that the feeling and sensation will return in due time (or as we would say, in God's time).
With Gran and Papa here with Jacob, Courtney and I were able go spend some time with our older son, James. I played hide-and-seek with he and his younger cousin, Ronnie and we just hung out with them for the afternoon. We then brought James down to the hospital to visit his brother. Jacob was very glad to see him (he points to him and calls him "Bubba").
Have a good evening and thanks for your continued prayers.
Daddy BA
Saturday, August 2, 2008
Morning Update - visit from the doctors
Jacob had a fairly peaceful night and slept really well for about four hours. There was a large thunderstorm that rolled through downtown Baltimore at about 4 am. We are on the 7th floor of the hospital and it was pretty amazing to see the lightning, rain and wind flash and blow over the tops and in between the downtown buildings. God's creation is truly a beautiful thing to behold.
This morning Dr. Sponseller came by to check on Jacob's right foot as well as the rashes he's developed. He, like Dr. Jallo, feels that the lack of movement in his foot is only temporary and was encouraged to see some improvement. He will continue to monitor this and perhaps begin to make some adjustments to the fixator in a few days.
About an hour later, two members of the Urology team, who will be performing his next surgery, stopped by to see Jacob. They checked out his rashes and advised that we should continue to treat them with the Nystatin cream, but that they will continue to follow his progress closely as we move toward the next surgery. So, far, we still don't know when the bladder surgery will occur, but most likely it will be the week of the 18th. We understand from talking to several of the nurses that we will truly be amazed at how Jacob will look after this next surgery. We also found out that he will be spending a fair bit of time in the IMC (Intermediate Care) facility after this next surgery so that his pain meds can be closely monitored.
Please continue to pray for Jacob's right foot, a slight cough he has developed, his rashes and that he will be able to begin eating more regular foods soon. He has been drinking plenty of fluids, but has not wanted much of his Pediasure. We will be trying some more solid foods as well.
Also, please pray that a spot may open for us to stay in the Children's House. We are currently staying in a nice townhouse that is very close to the hospital, but it is significantly more expensive.
We thank the Lord for the amazing skills and talents He has given to these surgeons, doctors, nurses and caregivers here at Johns Hopkins.
For His glory,
Daddy BA
This morning Dr. Sponseller came by to check on Jacob's right foot as well as the rashes he's developed. He, like Dr. Jallo, feels that the lack of movement in his foot is only temporary and was encouraged to see some improvement. He will continue to monitor this and perhaps begin to make some adjustments to the fixator in a few days.
About an hour later, two members of the Urology team, who will be performing his next surgery, stopped by to see Jacob. They checked out his rashes and advised that we should continue to treat them with the Nystatin cream, but that they will continue to follow his progress closely as we move toward the next surgery. So, far, we still don't know when the bladder surgery will occur, but most likely it will be the week of the 18th. We understand from talking to several of the nurses that we will truly be amazed at how Jacob will look after this next surgery. We also found out that he will be spending a fair bit of time in the IMC (Intermediate Care) facility after this next surgery so that his pain meds can be closely monitored.
Please continue to pray for Jacob's right foot, a slight cough he has developed, his rashes and that he will be able to begin eating more regular foods soon. He has been drinking plenty of fluids, but has not wanted much of his Pediasure. We will be trying some more solid foods as well.
Also, please pray that a spot may open for us to stay in the Children's House. We are currently staying in a nice townhouse that is very close to the hospital, but it is significantly more expensive.
We thank the Lord for the amazing skills and talents He has given to these surgeons, doctors, nurses and caregivers here at Johns Hopkins.
For His glory,
Daddy BA
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