Monday, September 29, 2008

Fun things to do while laying in bed.

Color on this cool thing Ms. Tara made me with velcro and a step stool.
This is fun

What is this hanging over my head.
I really like this. Thank you Ms. Tara

I'm sorry the pictures are all backwords, but while Jacob is asleep I'm trying to get as many in as I can. Love to all
Daddy and Mommy saying a prayer for Jacob and telling him how much we love him.


Waiting for Jacob to come out of surgery
Here he comes

Jacob outside the OR doors holding Gran's phone.
Daddy getting his kisses
Mommy getting her kisses

Everyone is getting me ready to go for my second surgery. Dr. Liz is the silly one in this picture. She just loves Jacob.
Zinkham Team loves Jacob. A picture of them and Jacob will be published in a Hopkins magazine sometime. I'm still looking for a copy.
My nurses are getting me ready to go.
The team is here to take me to the OR
To the Blalock building where the General Operating Rooms are. We didn't get out of bed at this time so Jacob loved going for the ride. He would point out everything on the way there.

Jacob loves to get a bath and get his head washed
I love brushing my teeth. Don't I look cute in this head piece?
Hey mama, where did that silly cap go?
Thanks for the comb.

Prayer, Praise and Update

We ask for your prayers Jacob as his bladder is still not draining properly. The doctors have tried several things over the past few days, some with temporary success, but still not where he needs to be. The main catheter tube is still in, so there is a place for the fluid to go (it is not "trapped" inside the bladder), but he should now be draining through his urethra opening. If he does not begin draining soon, he may have to have a scope done to see what may be causing this to happen. This will involve a trip to the OR and light sedation. We would love for this to correct itself on its own and not require the trip to the OR, but we know that the Lord will work through this situation that which pleases Him. Jacob is still coughing some and still dealing with congestion, so we seek your prayers regarding this as well.

We do have some praises to report, though. Jacob's fluid intake has increased greatly over the past few days, which is certainly an answer to so many prayers. Also, he had an "ultrasound" of sorts last week, which revealed that his bladder is capable of holding a good amount of liquid. This is also a praise because it may improve the success of future surgeries (not likely to occur for several years) that he has in this area which will possibly allow him to have greater functionality and control over his bladder. In addition, we've also noticed that even at such a young age, he seems to be aware of when he needs to "go" and while we don't know exactly what all of this means right now, we still praise God for this encouraging indication of progress.

On a final note, the orthopedic surgeon came in and confirmed that his plan is to do an x-ray on 10/6 and remove the pins on the morning of 10/7.

To the glory of the Great I Am,

Daddy BA